Social Networks Make Rare Diseases Not so Hard to Find

It was the middle of winter in 2009 when Margie Walsh doubled over in pain. Her husband whisked her away to the emergency room, and so began the seemingly endless process of CAT scans and PET scans, X-rays and blood work. After four days in the hospital, she received the news: Walsh was diagnosed with primary peritoneal cancer, or PPC, a disease so rare that most major organizations do not have statistics on it. The 55-year-old grandmother of eight from Chicago and her family began...Full Story
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