Patients can reverse the symptoms with an infusion of antibodies from donated blood called intravenous immunoglobulin or IVIG.
"Fundamentally, we think in some way it neutralized the abnormal antibody and allows their nerves to heal," said Gorson.
Gorson said the antibody infusions for CIDP also can be used to treat and cure Guillain Barre Syndrome, although the two syndromes probably have different causes.
"CIDP is an unpredictable condition," said Estelle Benson, founder and executive director of GBS/CIDP Foundation International.
"You never know how much is going to be damaged, how long it will take, how much [movement] you're going to take back," she said.
Benson first heard of Guillain Barre and CIDP after her husband fell sick with a cold.
"He had a bad cold and a week later he was completely paralyzed," she said.
Later, he was diagnosed with Guillain Barre Syndrome and eventually recovered.
But Benson was determined to bring sufferers from the two very rare diseases together.
"We started with eight people in the house and now we have 30,000 people, 160 chapters around the world," said Benson. "We've had people call from Ethiopia and Kenya with it."