Just days after Jackson Silver was born on Oct. 11, 2007, his parents' joy was replaced with horror.
As the nurse gently removed the bandage from the baby's left heel -- where blood is routinely drawn at birth -- a large patch of skin came off with it.
Jackson was diagnosed with epidermolysis bullosa or EB, a rare genetic disorder that makes the skin as fragile as a butterfly's wing. He is missing a protein that binds one layer of skin to another.
"Every morning Jamie and I wake up hoping...Full Story