Butterfly Kids: When Skin Blisters Can Kill

Just days after Jackson Silver was born on Oct. 11, 2007, his parents' joy was replaced with horror. As the nurse gently removed the bandage from the baby's left heel -- where blood is routinely drawn at birth -- a large patch of skin came off with it. Jackson was diagnosed with epidermolysis bullosa or EB, a rare genetic disorder that makes the skin as fragile as a butterfly's wing. He is missing a protein that binds one layer of skin to another. "Every morning Jamie and I wake up hoping...Full Story
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