Fearing Cancer, Woman With Lynch Syndrome Has Colon Removed

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Despite Fisher's success story, prophylactic subtotal colectomy is still seen by many doctors as a last resort.

ABC News contacted Fisher through beatingbowelcancer.org, a British charity dedicated to improving bowel cancer awareness and increasing early diagnoses. The charity also recommended speaking with Dr. Kevin Monahan of the Family History of Bowel Cancer Clinic at West Middlesex University Hospital.

Monahan argued that many doctors do not recommend the surgery because of the side effects that Lynne suffered and because preventative medicine can help fight Lynch syndrome. "Screening with colonoscopy is highly effective," he told ABC News. "Probably one of the most effective screening tests in all kinds of cancer."

He also cited a recent study in the United Kingdom that showed daily aspirin can reduce people's chances of developing colon cancer by as much as 50 percent.

Even Lynch himself admits the surgery is not widely supported.

"There was a lot of reticence by physicians to do that procedure," he said. "It's still not fully accepted."

But it is getting more common, and he knows some patients "desperately want to talk about it. The doctors need to listen to them."

Lynne says she was never really given an option -- her doctor said if she didn't have it, they would soon be treating her for cancer.

Today, despite all the side effects, she doesn't regret having the surgery.

"You have to go through that dark tunnel," she says. "At least I didn't have the cancer. And that's what I have to keep remembering."

She believes the good health she is enjoying because of her surgery means her brother Clive, who urged her to have the test for Lynch Syndrome, didn't die in vain.

"I'm giving it a good bash," she says. "If Sharon Osbourne can fight it, I can fight it."

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