Justina Pelletier Heading Home After 16-Month Medical Custody Battle


Tufts Medical Center spokeswoman Julie Jette confirmed that Justina was receiving care under Korson, but said “beyond that, we are not discussing her case.”

Lou Pelletier said Boston Children’s Hospital is no longer treating Justina, though some of its experts will consult with the Tufts team.

Officials at Boston Children’s Hospital have continued to not comment on the case.

DCF authorities have also declined to comment, citing confidentiality reasons.

Lou Pelletier said the family would “stick for now with” Tufts doctors, but would also “keep our options open.” He said his top priority since the ruling is to get Justina in physical therapy, which he claims she never received at JRI.

“She hasn’t had that and at some point, we need to do a full reevaluation medically,” he said. “We need to find out what the damage is that has been done to her. She has been like a prisoner of war for 16 months.”

When asked about taking legal action, Lou Pelletier said the family was still “catching our breath.”

“But at some point the people who were part of the abuse and torture of our daughter need to be held accountable,” he said. “Not just for Justina, but for all people who are put through this.”

Patient advocates were vocal on the judge's final ruling.

“This case not only has taken its toll on the Pelletier family but also has had a significant impact on the mitochondrial disease and rare disease community,” said Christine S. Cox, director of outreach and advocacy for MitoAction, a group that educates and advocates for patients with the disease.

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