Now, Landon also is participating in a study on cytokines, TNF and response to gut flora, which is being run by Dr. Harumi Jyonouchi, an associate professor at University of Medicine and Dentistry of New Jersey. She is also director of the university's Pediatric Center for Rare and Complex Disease.
Schulz said they have determined that her son likely would not overcome his severe reaction to foods. But CHOP's Spergel says he is "more optimistic."
"The majority of these kids we see outgrow it," he said. "Landon may not be able to eat everything, and he'll always need some elemental formula to get his balanced calories, but he'll be able to eat more than four foods."
Spergel applauds Schultz for starting her nonprofit and has pledged to support her.
"She has very global vision to everything -- which is fabulous," he said. "She is high energy, which is good. I say, 'Be careful, don't over-stretch yourself.' But I am impressed with how much she has done and how fast she's done it."
To which Schultz characteristically responds, "I have enough room to stretch right now. We have such an incredible community and I have been so touched by strangers. I don't even know them and they provide support. That's one of the beautiful things. I've been able to delegate and not one person said, 'I can't do it.'"
To provide corporate sponsorship or donations to begin international research go to the FPIES United Family Fund..