Oklahoma Baby With Unique Illness Celebrates 1st Birthday
Doctors "really don't know what to expect," said mom Anesha Davis.
— -- For Anesha Davis, celebrating her daughter's first birthday this weekend was an unforgettable milestone.
Davis' baby, named Victoria Rose, was born with a unique illness -- she is missing her 72 genes on her 7th chromosome, Davis told ABC News affiliate KSWO-TV in Lawton, Oklahoma.
Victoria's doctors at Oklahoma University Children's Hospital said they've never seen anything like it before, Davis told ABC News today.
"They really don't know what to expect with her because we don't have anything to reference it to," Davis said.
Victoria's medical issues include a missing heart chamber, an enlarged pulmonary artery, a cleft lip and a cleft palate.
At just 1 year old, Victoria has already had two heart surgeries and several medical scares, and she has another heart procedure coming up, Davis said.
So for Davis, taking the time to celebrate Victoria's birthday this weekend was truly "celebrating that she made it to a year."
Although Victoria is paralyzed from a recent surgery, Davis said it was great to get her a cake and get the family together.
"It was the best feeling in the world because I didn't know if she would make it to a year," Davis said. "Every day is just up and down. It's been exhausting this year. She finally made it to a year and we just wanted to celebrate big."
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