The Abigail Alliance has also lobbied for a bill in Congress on the topic for several years. Though introduced in the House and Senate in the 109th Congress, the legislation has not yet been reintroduced in the current session of Congress.
Burroughs has also sued the FDA in hopes of patients gaining earlier access to promising developing drugs; the Supreme Court decided in January 2008 not to hear the case.
According to the American Cancer Society, it's estimated that more than 34,000 people in the United States will die of pancreatic cancer in 2008. Pancreatic cancer is the most deadly of all cancers, with a patient's chances of living for five years the lowest for any cancer.
"I think it's just awful that they're making people suffer like this when they know there's just something that can improve their chances," Jackie Loughman said.
"The fundamental principle of drugs is that they need to be safe and they need to be effective," Young said. "Unless we know that, we need to be cautious about giving them out to people."