Terminally-Ill Toddler is Facebook Hit

According to Britain's National Health Service, there is a 60 percent mortality rate on liver and intestine transplants in the United Kingdom for children who weigh less than 10 kilos, or 22 pounds.

In successful transplants, 60 percent to 70 percent of those children go on to live for about five years. Seventy percent to 80 percent survive for one year. According to Gupte, some children can survive up to seven, even 10 years following these kinds of transplants.

To most people, this does not seem like a lot of time. Bethany's doctors, however, remain optimistic and maintain that for parents, a few years with their children is better than none.

"What we have to think about is that this transplant is offering an option that if the child develops progressively, the child can lead an extremely good quality of life for a given number of years," said Gupte.

"Whatever time the parents get with their children leaves them with at least some happy memories for the rest of their lives. When you are faced with the option of death, parents are willing to take that chance."

Finding Your Own Donor

For Bethany's parents, a donor cannot come soon enough. Just getting on a donor list can be disheartening. In Great Britain, children must have a maximum life expectancy of three to six months to have their names added to a national donor list.

Registering their daughter on Facebook has given Summer and Dawson control over the process. The worldwide networking platform also helps parents help their children as they wait days, months, even years before they hear anything from the hospital.

But what do doctors think of all this?

"As a doctor, any family that is encouraging organ donation is good news for the transplant team simply because of the shortage of organ donors in the U.K.," Gupte told ABC News.

"There is a particular shortage of child organ donation in this country, so as a pediatrician, I think what Bethany's parents are doing is great. But as a transplant surgeon it makes things slightly more difficult because there is a high risk of children dying while on the transplant list."

Gupte emphasizes that it is always a difficult decision when a loved one is dying, especially if it is a child. Parents also need to be aware that organs from one child can be used for several children -- a heart, a liver, a pancreas.

"We sympathize with parents whose children are on the transplant list, Gupte said.

"I guess they are trying to do everything possible for their child; when you are in a desperate situation, it is only a natural reaction."

Encouraging Others

For Bethany's parents, the decision came easily.

"Encouraging other parents to put their children, as well as themselves, on a donor's list may not be the most natural thing," Summer said, "but it would be if it was their own child that was ill."

But for a little girl who has spent only nine weeks of her life at homel and the rest in the hospital, it has not been the ideal childhood.

"It's been horrible," Summer told ABC News. "Most of time we live in the hospital, trying to lead a normal life. It's a huge strain on us as a family -- as parents and on Bethany. But by now Tim and I are so used to being in the hospital."

The couple's other daughter, 2-year-old Katelyn, spends much of her time in the hospital's playroom, as her parents try not to focus too much on what's to come for their family.

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