Man Becomes First Duchenne Patient to Get LVAD


Williams and Jones have lived at the hospital for more than a month, but Williams hopes to be home in time for Thanksgiving, Jones said.

"There have been times through this that he's been very frightened, and there have been times that he's said, 'I wish I hadn't done this,'" Jones said.

Williams said it is too soon to tell whether the surgery helped him, but the hope is that he'll have more energy and be able to breathe easier soon.

Although non-Duchenne LVAD patients usually report drastic changes to activity, such as suddenly being able to climb stairs, it will be harder to measure in Williams' case because of his disease. In time, he should start to feel better, though doctors don't quite know what that means yet.

"I'm excited because there are lots of things that Jason would like to do but he's not been able to because of his lack of energy," Jones said. "I am just happy that now I think he's going to be able to do more."

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