Transcript for How Should Genomic Information Be Shared?
We now have the ability to establish diagnoses of genetic conditions not by testing one gene at a time -- -- used to be done. But by doing a complete sequence. Even the entire genome -- just that part... See More
We now have the ability to establish diagnoses of genetic conditions not by testing one gene at a time -- -- used to be done. But by doing a complete sequence. Even the entire genome -- just that part of the genome. That is involved in encoding proteins and when you do that you have the ability to be simultaneously. Testing for any potential cause of a person's problems. I think the big questions are. Not so much whether it's your right to have this -- not to have it but what is the best context in which provided. And should we be offering appropriate genetic counseling -- careful thought as to which kinds of genetic changes are. Ones that really should be communicated and how should they be communicated. I think the community would say that. If you find something that has huge medical implications and where there is -- treatment that you could offered. If you had identified that particular genetic problem and if the person is at an -- -- the part of the time in their life when they could benefit from it. That it actually may be unethical not to share that a good example would be an adult found to have a mutation. That would cause breast or ovarian cancer with very high risk. We're we know that there are things you can offer somebody to reduce that risk so. I think it could be argued that it's not ethically defensible. To withhold that kind of information.
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