Andrew told the BBC, "The threat that somebody could come and forcibly remove your daughter from you ... was quite upsetting really."
He recently was forced to cancel a family trip to Disneyland in Florida because he couldn't get Hannah insurance coverage. The holiday had been donated to them by U.S. charity Cauldwell Children.
It's thought that Hannah's heart was weakened by the drugs she was forced to take as a child for her leukemia. Her heart can now only pump 10 percent of its capacity.
Doctors have given the teenager six months to live and she will get to spend the rest of her short life at home in Marden near Hereford, enjoying it with her parents, brother and two sisters.
The Primary Care Trust for Herefordshire told ABC News that it will continue to work in Hannah's best interests.
"When considering whether a child is able to make a decision we would consider the age and the maturity of the child as well as the views of the family and others as appropriate. A child has the right to change their mind and all professionals providing support to the child and the family have to be sensitive to that," the agency said.
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