Hurricane Caregiving: What's Best For Frail, Elderly?

PHOTO: Ted Martini , the sole caregiver for his mother Joan Martini, who has vascular dementia, tried to make her daily life as normal as possible as they rode out Hurricane Irene in their Beaufort, N.C., home with plenty of food and water, but no electri

As the sole caregiver for his 83-year-old mother, Ted Martini wrestled with how best to protect her as Hurricane Irene threatened North Carolina's nearby Outer Banks. He and his mom, who suffers from vascular dementia, could ride out the hurricane in their home. Or, they could jump into the car and try to outrun the destructive winds and water.

"I honestly felt either way was a bad decision," Martini said Tuesday from their house in Beaufort, N.C., which lost electricity for two days, but weathered the storm without damage. "If we stay home, we have a chance that things will be bad. If we go on the would be days and days of excess stress on her, and discomfort and fear."

Like other caregivers, Martini faced the dual burden of needing to keep his mother safe while making sure he could continue meeting her needs in the midst of a monster storm. He knew how much she counted on him to be there.

When Joan Martini, a former New York City paramedic, retired to North Carolina, her son Ted, a graphic artist living on Staten Island, moved down too. Over time, she suffered multiple strokes and transient ischemic attacks, called mini-strokes, which made her physically unsteady and prone to agitation when her routines were disturbed. In the last few months, she began using a walker to get around the house and a wheelchair to go out.

Once an avid reader and knitter, she spends most days in bed or on a couch, quietly watching her son cook, clean and care for their home. She gets twice-weekly visits from nursing aides, and receives at-home physical therapy through a home health care agency.

Before the storm, the nursing aides told Martini his mother would be safest in the small, single-story house they've shared the last six years, since Martini sold his pub to care for her 24/7. "She really needs constant eyes on her," he said, as he described the worry he feels every time he leaves her, even briefly.

Caregivers From Online Forum Offer Long-Distance Support

Martini also sought advice from fellow caregivers he'd met through the online community created by Last Thursday night, he posted an account of his dilemma, describing how he was "going nuts" choosing between "being stuck on the road" or remaining "barricaded in the house." He described how he tried to get a reservation at a hotel across the street from a hospital, only to learn it was fully booked and didn't have a waiting list. "Wish us well. I hope I'm making the right decision."

Because their neighborhood wasn't under a mandatory evacuation, Martini opted to stay where his mother would feel safe and he could more easily "keep a happy attitude and make preparations." His goal was to keep her "calm and occupied."

He boarded up the windows and re-charged cell phones. He bought flashlights, batteries, non-perishable food, bottled water, extra disposable underwear for his mother, and "ice like crazy," to keep the contents of the refrigerator and freezer cold as long as possible if the power went out. He filled the bathtub should they need more water to flush toilets. The local pharmacy agreed to refill prescriptions for some of his mother's medications, even though it was three days too early to renew them.

"My main concern was not to disrupt anything; to keep everything as consistent as possible for her."

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