The National Council on Disability released in October a tool kit that helps states find ways to close nursing homes and other institutions that care for children like Marie Freyre because of both "harm and cost," said Powell. "We know it is cheaper to provide, and children should live with their parents."
"Support you are talking about is typically temporary or intermittent," she said. "After the first two or three years, you don't need it anymore. The kids are up and walking."
As for Doris Freyre, she said her whole life revolved around her daughter and it was taken away.
"It was unbelievable -- she took care of her for 14 years," said Freyre's friend Marissa Vasquez. "She was good mother, a special mother. God knows who to give kids like this to."
Freyre said she made sure her daughter got outside each day, home schooled her and even took her to physical therapy and swimming lessons.
The girl was not able to talk, but could gesture. "She was very intelligent, and knew all her surroundings," said Freyre. "She understood perfectly when you talked to her."
Freyre said she complained to authorities that being on a stretcher for five hours would hurt Marie, who had two dislocated hips. She also worried about hydrating the girl so she did not seizure.
"I knew what would happen to her," she said. "First, when she stopped her seizure medications, she would go into a tantrum in that heated condition. She would start screaming and they wouldn't know how to deal with her -- she would be crying all night."
"I loved my daughter with all my heart," Freyre said. "She had a horrible, horrible death."