Fight for Untested Treatment Spawns Debate

Few stories of desperation could match that of a parent fighting a bureaucracy to help their dying loved one. In the last couple years, some families have become real professionals at getting the latest untested treatment that holds promise, triggering a debate that pits medical ethics against a mother's love for a suffering child. When Penny Lopez, 25,learned that two of her three young children had Sanfilippo Syndrome -- a rare genetic disease that would lead to mental decline and certain...Full Story
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