Inspired by their father, Alexandra's brother Matthew Reeve has made a documentary about his father's life after the horseback-riding accident that left him paralyzed in 1995.
"No matter what format, it gives a sense that this child was loved and what the person was like. It says, 'this is who my dad was, or my mom was, or my grandmother was,'" said Michelle Reiss, a psychotherapist and the assistant director for the Family Practice Residency Program at the University of Pittsburgh Medical Center St. Margaret Hospital in Pennsylvania.
Reiss counseled the family of Carnegie Mellon University professor Randy Pausch before his death from pancreatic cancer at the age of 47 last year.
As part of a legacy for his three children, all younger than 7 when he died, Pausch gave a speech about life's lessons called "The Last Lecture," and saved it for his children. A videotape of the lecture went viral on the Internet and eventually reached an audience of millions.
Reiss said in the case of such young children, their lack of understanding of time and mortality can make talking about death very complicated.
"Little ones are not really capable of [understanding] the concept of death the way we do," Reiss said. "Lots of younger kids who lost parents look sad and seem to understand it and then ask, 'when is daddy coming back?'"
Research from the American Academy of Pediatrics shows that children begin to fully grasp the concept of death between the ages of 8 and 12.
But even if children don't fully understand, experts say it's important for parents to stay honest: honest about their future, honest about their beliefs for the afterlife and honest about their emotions.
"I wouldn't advise people to say things that they don't believe in," Chynoweth said. "I wouldn't think that you have to make something up. Kids are perceptive and they'll see that that's not genuine."
Aside from emotions, Chynoweth said some concrete facts can help a child watch a terminal illness.
"The good thing with kids is to prepare them for the things that they see," Chynoweth said. For example, if a parent has cancer, Chynoweth said it's reassuring for the child to hear a name of the diagnosis, a name for the medication and cause and effect explanations for such things as cancer medicine that causes the parent to lose their hair.
"It's basically not a good a idea to tell them dying is like going to sleep -- later they may want to go around checking everyone at night, or they don't want to sleep themselves," Reiss said.
On the other hand, Reiss said giving too much detail or long-winded explanations can confuse a child and add stress.
"It's pretty useful to give kids a little information and then give them a chance to ask questions," she said. That way, the parents will understand how much their child is grasping the concept of death.
Reiss said that in her experience, children commonly have fears about life after the parent's death or have guilt over the death, rather than fear of death itself. In this case, a little preemptive reassurance that he or she will be cared for and isn't at fault can ease a lot of anxiety.
"There's no cookie-cutter way to say something to people," Chynoweth said. "But, if something is going to impact a child's life, they do need to know about it."