Missed ADHD Diagnosis, Lost Childhood

PHOTO: Andrea Frank, with sons Josh and Colin, was not diagnosed with ADHD until she was an adult.
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Reckless, impulsive, distracted. Andrea Frank, a 38-year-old nurse’s assistant from Wisconsin, said those words pretty much sum up her behavior from early childhood onward.

Though obviously bright, she did so poorly in school she was left back several times, dropping out in her junior year of high school. Parents and teachers tried to motivate her, she said, but ultimately they wrote her off as lazy and unfocused.

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“I always felt awkward and odd,” Frank recalled. “I couldn’t find a place to fit in.”

Frank drifted into adulthood, never living up to her potential. Eventually she married and had two sons, Colin and Josh. When the boys were still toddlers they began exhibiting many of the same hyperactive and inattentive behaviors Frank had as a child. That’s when she knew she had to find some answers.

Eight years ago a doctor diagnosed Frank and her sons, now 11 and 13, with attention deficit hyperactivity disorder, or ADHD. ADHD is a common childhood condition characterized by far more than normal difficulty with focus, behavior control, impulsivity and hyperactivity – exactly the symptoms Frank and her boys experienced.

“That diagnosis changed my life,” Frank said. “It made me feel like a person, like I could finally explain the way I am and have it make sense.”

A Slower Changing Brain

ADHD affects 9 percent of children younger than 18 and about 4.1 percent of American adults, according to the National Institute of Mental Health. Boys are four times more likely to be diagnosed with the condition as girls but after adolescence, males and females are diagnosed in equal numbers. Some kids grow out of it, and some, like Frank, never do.

Doctors aren’t entirely clear what causes ADHD. It could be a combination of genes and environment, said Sue Visser, a lead epidemiologist with the National Centers on Birth Defects and Developmental Disabilities.

“We do know that children with ADHD have brains that develop differently,” Visser explained.

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Visser said that when a child’s brain grows normally it goes through a “synaptic pruning,” a process where the brain consolidates and reorganizes its connections so it can operate more efficiently. But in the brain of a child who has ADHD, synaptic pruning is delayed by about three years.

The brains of many children with ADHD do catch up eventually and adolescence or early adulthood, their ADHD symptoms fade away. But for some people, ADHD is a chronic, lifelong condition, Visser said.

Diagnosis and Treatment

The criteria for diagnosing ADHD are very clear, Visser said. However, since it shares traits with many other mental health conditions, it is notoriously difficult to diagnose. A thorough assessment by a professional is essential, Visser said.

“This is not something you can diagnose or manage on your own,” she said.

Treatment for ADHD varies with age. For very younger children, Visser said that behavioral therapy is usually the go-to method with medications being given as a last resort. After the age of 6, however, most mental health experts believe that stimulant drugs in combination with therapy works best. Experts almost always recommend adults with ADHD take some type of medication to manage their symptoms.

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