Although he is not very verbal, Medvin said Avery can almost always decipher his needs. When Medvin tries to figure out what Xander wants or needs, she sometimes relies on Avery’s interpretation.
“They would share a look and she would turn to me and say, ‘Xander wants juice,’ or ‘Xander is hungry,’” said Medvin.
Medvin said one struggle has been to get Avery not to “mother” Xander so much, so that he can learn to clear his plate and ask for help on his own.
Last month, Medvin, also a filmmaker, started an online fund to raise additional money for the documentary about the twins. Titled, “A Little Hero,” the documentary will show Xander’s disorder through Avery’s perspective.
“I saw the exceptional bond that they had. I noticed the majority of the films out there were from parental or adult perspective,” said Medvin. “This was so innocent and sweet. This is her own words.”