Brandi Koch of Clearwater Beach, Fla., says she feels as if she's living in a horror movie. She claims she has colored fibers coming out of her skin.
Brandi is married to Billy Koch, a former Major League baseball player who was one of a handful of pitchers who could throw a ball at more than 100 mph. Koch says her life was good, until one day in the shower she noticed something strange -- tiny fibers running through her skin.
"The fibers look like hair, and they're different colors," Koch says.
Koch says she knows that what she's experiencing "sounds crazy," but it's true. "If I had a family member call me up and say, 'I have this stuff,' I'd say, 'I'm sending a straitjacket over. You need some help.'"
Anne Dill describes a similar condition. Looking at Dill's life, it appears as if she's living an idyllic existence in a home on Florida's Lake Mary. Her three daughters excel in sports and are straight-A students.
But life in the Dill household is far from idyllic. Anne's 40-year-old husband, Tom, died in January and she believes his death was due to a contagious illness that has infected her entire family.
Dill describes her family's skin: "There's this fibrous material. It's in layers." Dill says the skin on their hands is particularly bad, very swollen and itchy. She says it feels as if bugs are crawling underneath the skin.
Dr. Greg Smith of Gainesville, Ga., has been a pediatrician for the past 28 years. He claims a fiber is coming out of his big toe, and he has video footage to prove it.
"It felt like somebody stuck a pin in my toe and wiggled it and it just continued to hurt," Smith says.
He says he never thought he had bugs. "I've certainly had those crawling sensations, and the fibers which come out of the skin are really bizarre, and really odd."
When Koch, Dill and Smith consulted doctors, they received diagnoses that they call wrong or dismissive. Dill's doctor told her to stop scratching, even though many of her sores were in places she could not reach.
Koch went to the Mayo Clinic, where doctors didn't believe that the fibers she'd brought them had grown from her body. "I saw the infectious disease doctor, and I showed him some samples that I had and he snickered. I can't go through another doctor blowing me off or looking at me like I'm crazy. I know I'm not," says Koch.
Smith -- a doctor himself -- was handed over to a hospital psychiatrist when he went to the emergency room complaining of a fiber in his eye. He admits that he, too, would be skeptical if a patient came to him with the same story.
"I would wonder if they'd taken their medicine that day. It makes no sense. It's totally bizarre. It's something that -- just telling the story is so outlandish on the face of it -- that no one would believe it," Smith says.
Dr. Vincent DeLeo, chief of dermatology at New York's St. Lukes-Roosevelt Medical Center, weighed in on what he'd say to someone who came to him with this condition. "I don't think this is any different than many patients I've seen who have excoriations and believe that there is something in their skin causing this."
DeLeo says the open lesions are a result of scratching the skin.
But for biologist Mary Leitao of Surfside Beach, S.C., medical skepticism was something she refused to accept.