and we are back now with the "sunday spotlight." Shining today on the miracle baby born to a member of congress. Jaime herrera beutler's baby was born with a fatal disease. But thanks to an... See More
and we are back now with the "sunday spotlight." Shining today on the miracle baby born to a member of congress. Jaime herrera beutler's baby was born with a fatal disease. But thanks to an experimental treatment, she's made an incredible comeback that's left her doctors and parts in awe. David wright has the heartwarming story. Reporter: Jaime beutler is a member of congress with a constituency of one. Little abigail beutler, born three months premature with a birth defect that's normally fatal. It's welcoming to be parents. Every day is so exciting. And -- sorry. Full of so much joy. Because we didn't think we'd ever be here. Reporter: Their world changed may 20th during what was supposed to be a routine pregnancy scan. I could tell there was something different. He just -- he kind of went ashen, the ultrasound tech. Reporter: The technician couldn't see any kidneys. Dr. Steven alexander says it's potter's syndrome. It's really rare. One in 60,000, I think. The doctor, he just said, it's -- he was like, gosh. He said, this is not compatible with life. She is not going to live. And as he was saying it, I could feel her moving. Reporter: Inside her, the baby was kicking, almost as if she disagreed with the doctor. There are a lot of parents who would hear that from a doctor, and make a choice to terminate. It was offered. We knew -- it was offered. Reporter: But all three of them chose to fight for her life. Potter's syndrome, caused by a critical lack of amniotic fluid meant the baby's lungs and kidneys couldn't form properly. They found an expert at johns hopkins willing to experiment, to replace the amniotic fluid. It was cutting edge. Reporter: It worked. She was born at 28 weeks with no kidneys, but lungs able to sustain life. A medical first. We expect a full and normal childhood for her. Reporter: She'll need a trance plant, and daily dialysis until she gets one and be spend her first six months here at the stanford hospital. Stanford, johns hopkins, it takes a village. A smart village. It does. Reporter: The multi-million dollar treatment plan covered by medicare and the congressional health plan. You're not getting much of a maternity leave. You're going back to the syria vote? I am. It's important. I'll still be here though. Very jealous. Reporter: A miracle for mom and dad, and especially for little abigail. For "this week," david wright, abc news, palo alto. Love to see that little girl. And now we honor our fellow americans who serve and sacrifice. This week, the pentagon released the names of two service members killed in afghanistan. And that is all for us today. Thanks for sharing part of your sunday with us. Diane will interview president obama on the crisis in syria, that's tomorrow on world news. And we'll have full coverage of the president's address to the
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