According to the family, Justina was taken to Boston Children's Hospital's emergency room in February 2013. At the time she was being treated by Korson at Tufts for mitochondrial disease, a rare genetic disorder with physical symptoms that can affect every part of the body.
Since then, Justina has been confined to a wheelchair, and Pelletier has alleged her medical symptoms are not being treated and her condition has deteriorated.
Justina's older sister, Jennifer Pelletier, 22, told ABCNews.com in March that she was concerned about swelling in Justina's legs, which "could be a heart or kidney condition."
"Every time I see her she is worse," Jennifer Pelletier said.
Boston Children's Hospital has argued that Justina's symptoms are psychosomatic and laid out a treatment plan that the parents rejected. The hospital then filed a complaint with the Massachusetts Department of Children and Families, as required by law, because it suspected the parents of child abuse for subjecting their daughter to invasive medical treatments and denying her mental health therapy, according to numerous reports in the Boston Globe.
Boston Children's Hospital released this statement following the March court ruling: "We understand that the nature of this case has prompted questions and sparked strong reactions. But our clinical team has always acted in the best interest of the patient's health and well-being, according to the high standards we follow for every patient placed in our care.
"This case was a complex matter, presenting an array of challenges and obstacles that we cannot discuss out of respect for our patient's privacy and legal confidentiality requirements. We have been unable to provide a full and accurate picture of the case. But we are confident the treatment plan developed for our patient was the best course given the issues surrounding her medical history, the evaluations and observations of her care teams prior to arriving at Boston Children's and after she was admitted here."
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