"Now there is much more awareness," said he said. "But not all the education comes because the doctor is smart. A lot comes from people on the Internet learning about this, going to websites and learning information and networking with others."
Nine months after Hayley got sick, she began treatment at the Mayo Clinic. She takes beta blockers to tighten her blood vessels and tries to stick to a healthy exercise and eating regimen.
"This was so simple," said her mother.
Today, Hayley is 15 and headed for the 10th grade in the fall, weighing in at 100 pounds -- a 30-pound gain from when she was at her worst.
Hayley sometimes balks at her morning exercise regimen, 30 minutes of dancing on the Wii. One of the challenges is of POTS is getting enough exercise.
"It used to be fun and now the body feels too tired and can't do anything," said Fischer. "But it's probably the most important thing for recovery."
Hayley sometimes gets headaches, but is otherwise fine, roller skating around her neighborhood this summer with friends.
"I feel good," she said. And of her doctor, "He was cool."
Like her mother, Hayley said she now knows not to take no for an answer. "They said I didn't have anything, but I wasn't pretending to be sick."
And Hayley is proud of her mother for being strong and finally getting help.
"Don't give up, don't ever give up," said Lairmore. "And don't listen to the doctor when you are right about your child. I am sorry to give doctors a bad rap, but so many told me there was nothing wrong with her."
"My daughter knew I was on her side and I believed her," she said. "Doctors are not God."