This Emotional Ice Bucket Challenge Video Gives Real ALS Perspective

An ALS sufferer hails the viral video fun, while reminding us that the disease itself is devastating.
2:56 | 08/21/14

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Transcript for This Emotional Ice Bucket Challenge Video Gives Real ALS Perspective
We're about to witness the upside of the ice bucket challenge. It's been everywhere, from your news feed to the newspaper. And just when we're all wondering, what's it all for, the guy you're about to meet comes to the rescue. Here's ABC's John donvan. Reporter: Okay. So, you've seen celebrities do it. And news personalities. And athletes. And a president. Even puppets are doing it. And you know why. Social networks. One wet head challenges another. I challenge -- I nominate -- Nominate -- I challenge you -- Reporter: Results, whole chains. But what is it, really? Everyone knows it's for A.L.S., the rare disease. Three letters that never had this much visibility before. But Anthony carbohal, when he took the challenge himself, had a different idea in mind. His video goes on to let you meet his mother. She has A.L.S. She cannot speak. And Anthony's point. The ice water is all fun. But what it's for is hard. Very hard, when it's in the family. A.l.s. Runs in my family. My grandmother had it. She was a second mother to me. My mother was diagnosed when I was in high school. And I was diagnosed at 26 years old. It's so . You have no idea. Reporter: Anthony's video is filled with some Lang silences. They say so much. And as good as Anthony looks right now, he's feeling it already. They're getting white. Eventually, I won't be able to use my arms or hands at all. Reporter: He doesn't want to be a downer about this. So, he goes on to issue his own challenge. I nominate Ellen DeGeneres. You should do it, girl. Reporter: As far as the challenge carnival goes, he's all for it. You have no idea how ever, single challenge makes me feel. Lifts my spirits. Lifts every single A.L.S. Patient's spirits. Reporter: It's okay to laugh. It's good to laugh. But it's good, in Anthony's view, to remember why. You're truly making a difference. And we're so, so grateful. Reporter: And for "Nightline," I'm John donvan, in Washington. And just today, Ellen DeGeneres accepted Anthony's challenge and invited him to be on her first show in the fall.

This transcript has been automatically generated and may not be 100% accurate.

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