Girl With Rare Disorder Has One Birthday Wish

PHOTO: Ali holds letters from well-wishers, Aug. 13, 2014.
Share
Copy

Ali Najera is turning 10 next month and it’s a birthday that calls for a big celebration. Diagnosed at age 8 with a rare neurological disorder, making it to 10 years old is a gift in itself for this Texas girl, and Ali wants one thing to mark the occasion.

"She want cards from all over the world," Tianna Morgan, Ali’s mother, told ABC News.

Ali, one of five children, was diagnosed with neurodegeneration with brain iron accumulation (NBIA) two weeks after her 8th birthday. The disorder is progressive and causes movement and communication difficulties.

Read More: What Does This Mass. Boy Battling Cancer Want for His Birthday? A Bunch of Birthday Cards

Read More: Cards, and Love, Keep Pouring In for Little Boy Battling Cancer

PHOTO: Ali enjoys the water park at Schlitterbahn in Galveston, Texas, Aug. 10, 2014.
Courtesy Tianna Morgan
PHOTO: Ali enjoys the water park at Schlitterbahn in Galveston, Texas, Aug. 10, 2014.

“She has iron accumulating in her brain, and it’s actually destroying a part of her brain,” Morgan said. “As it accumulates, it affects her nervous system and her muscle tone, and eventually it will take away her ability to control any of her muscles.”

Though Ali has had the diagnosis for two years, her mother said, it has rapidly progressed within the last year. At the end of July, Ali found out she was going to have to stay in a wheelchair, but she continues to stay positive.

“Even through all this, she always has a smile on her face,” said Morgan.

On Sept. 9, Ali will turn 10, and it’s an important milestone to reach.

“It’s a double digit birthday,” Morgan said. “We don’t know how many birthdays she has left.”

Ali's mother has worked to get out the word of Ali's wish for birthday cards from all over the world to as many people as possible.

PHOTO: Ali with her family before church on Easter Sunday, April 21, 2014.
Courtesy Tianna Morgan
PHOTO: Ali with her family before church on Easter Sunday, April 21, 2014.

“That’s a wish we hope we can grant,” Morgan said.

Early birthday cards sent to Ali have instantly brightened her day, Morgan said. Though Ali stays in her room a lot because of how difficult it is for her to get around, when cards are delivered she always comes out to read them.

“She loves all of her birthday cards,” Morgan said. “Every single one is special to her.”

“It’s been very inspirational and touching to see how much love is being shown towards Ali,” Morgan said.

People can make Ali’s birthday extra special by sending a birthday card marked with “Ali’s Birthday” to P.O. Box 2586, Jasper, TX 75951.

Need some card-related inspiration? Ali loves princesses, music, coloring, reading and anything that falls under the category of “artsy stuff.”

PHOTO: Ali poses with a birthday cookie cake given to her by the staff at the local news station that interviewed her, Aug. 6, 2014.
Courtesy Tianna Morgan
PHOTO: Ali poses with a birthday cookie cake given to her by the staff at the local news station that interviewed her, Aug. 6, 2014.

Learn more about Ali here:

Ali's GoFundMe Page

Ali's Facebook Page

Ali's Letters Project Page

Join the Discussion
You are using an outdated version of Internet Explorer. Please click here to upgrade your browser in order to comment.
blog comments powered by Disqus
 
You Might Also Like...