Helping the Girl Who Couldn't Smile

Girl Who Cant Smile

Twelve year old Kiana Deane was born with her face partially paralyzed, and for her entire life, she has not been able to smile.

Kiana says it's her "inner smile" that counts, and a surgical procedure taking place today could turn that inner smile into an outer one.

Kiana, who lives in Culver City, Calif., has had to face overwhelming struggles and challenges from day one.

"Kiana was born into this world through two drug-addicted parents who were described to me through the social workers as street junkies," explained her mother, Robin Deane, who adopted Kiana in 2001 at age 3. "So she was immediately placed in foster care."

It was difficult to find an adoptive family for the little girl who couldn't smile, but Robin Deane saw something special.

VIDEO: Kiana Deane, born with partial facial paralysis, undergoes surgery.
null

"I was drawn to her and I was connected to her. And I -- just believed for her," she said. "And when I was at the adoption fair the line for babies was very long. But then the line for special needs children ... I was the only one in that line."

Kiana had been born addicted to methamphetamine, and was paralyzed on one side of her face. Doctors didn't know if Kiana had a rare condition called Bell's palsey, the leading cause of facial paralysis in the United States, or another similar condition that causes partial paralysis.

"This side goes up, the left side," Kiana said. "And [the right] side doesn't. ... Doesn't do anything."

Kiana also explained that her left eyebrow doesn't move up and down, and she can't close her left eye all the way.

"So this side just ... stays there," she explained.

"They didn't think that she would achieve in school," Robin Deane recalled. "And just everything was just negative. But she has overcome all of that. And now she wants ... she's here today because she wants to tell the world her story."

Teasing 'Really Hurt' Kiana Deane

The smile is one of the most fundamental body language expressions, and as she's grown, other children have made fun of Kiana's paralysis.

Deane said when her daughter smiles, the result is "more like a grimace."

"Only one side of her face smiles upward," she said, "and so she's constantly teased regarding that. Constantly asked questions regarding that. Also, questions such as 'What's wrong with you? Why do you smile like that?' Or, 'What's wrong with your face?' That sort of thing."

"Behind my face is just, like, a paralyzed girl," Kiana said. "Inside's just ... a kind, sweet girl who is also paralyzed. So paralyzed girls can be kind and sweet too."

"I believe the most painful part has been, for her, being ostracized," her mother said, especially in middle school when self-esteem is fragile and "vitally important."

"She'll get in the car and say, 'Mommy, my best friend said, 'You look weird when you smile.'" And so things like that hurt. But they don't understand. They don't mean any harm. Kids really don't understand."

Kiana said that other students can be "really mean."

"One time at PE, when I was in fifth grade -- it was either fourth or fifth grade -- and they wrote, 'Kiana is so ugly." And they wrote it big chalk letters. They wrote, 'Kiana is so ugly.' They wrote it on the ground. 'Kiana is so ugly, she will never be pretty,' or something. And then that really hurt me."

The teasing has caused Kiana to try to cover her face at times.

Page
  • 1
  • |
  • 2
Join the Discussion
You are using an outdated version of Internet Explorer. Please click here to upgrade your browser in order to comment.
blog comments powered by Disqus
 
You Might Also Like...