When Anonymous Egg Donors Have Genetic Diseases

"This said to me that there isn't an overarching need for this service," he said. "There is a group who wants to know their donors but they're not disproportionately purchasing the ID consent program."

Wendy Kramer has done what the industry has yet to do, setting up a voluntary registry that has already connected thousands of sperm and egg donors and their children -- some who share valuable information.

It began with her son asking questions about his biological father that Kramer couldn't answer.

"I feel that my right to know who my donor is and my genetic origin is just as strong, if not stronger, than my donor's right to remain anonymous," her son Ryan Kramer said.

Nicole and Chris Witt initially didn't want to know much about the egg donor who allowed them to have Brianna, 5, and her brother Eric, 3.

After struggling with infertility for years, they were elated to finally start a family.

"The whole thing was anonymous, and that was how we wanted it at the time," Nicole said. "We didn't even want to see a picture."

Now, the Witts can see how the 15 pages of health information provided by their anonymous donor may not tell them everything they want to know.

But at this point, they believe their donor has done more than enough. "We love them to pieces," Chris said, referring to his children. "I can't imagine life without them."

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