Though she was once able to walk, her knees can no longer hold her weight, so she is mostly confined to a reclining wheelchair. Lying flat on her back is not only painful, but dangerous because it puts too much pressure on her fragile organs.
Tanya is on multiple drugs, including a cold, thick Vaseline-like medicine that her mother injects once a month. Much of the medication is for her excruciating pain.
The family has health insurance, but they have already spent $200,000 of their own money on her care. The medicines alone cost $45,000 a month.
"My husband is running out of CDs," said Strutynski. "We bought a 22-foot motor home to travel east, and bought it on a loan and there wasn't enough for a downpayment, so he traded in his Corvette."
Everything in her home is custom made, from her reclining wheelchair to the enormous bed with a specially-padded mattress.
As a former horseback rider and swimmer, Tanya finds being weightless in the backyard pool therapeutic, although it takes two people to get her in the water.
"Karen and Allen [Strutynski] came and wanted a lease for their daughter and told me she had gigantism," said Valle, 53, who lives in New Mexico.
"I thought OK, I have seen that in books, but when I saw Tanya came in -- wow -- she is big, she is really big," she said. "And she weighed a lot more at the time. But her personality came through so fast and her size dissipated and I fell in love with her right away."
"She is the kindest, sweetest, most loving girl," said Valle. "When people meet her they want to give her everything and want to do anything for her."