Rare Transplants: Many Are Still Waiting
One-year-old Gabrielle Phillips is on the wait list for an intestine transplant.
April 17, 2009 — -- A small intestine transplant remains a rare procedure. Just 1,000 have been done in the world, and Georgetown University Hospital -- a leading center for the procedure -- has done just 100 in the past five years.
When "Nightline" began working on a profile of Dr. Thomas Fishbein and Georgetown's new Transplant Center for Children, we didn't want to just interview a patient after the fact. We wanted to follow a family through the entire process, a process that we understood could take months.
Like the families, we didn't know how long they would have to wait to get that phone call saying a new small intestine was available or what the outcome would be, so we decided to follow two families.
Devin McQueen was born with "short gut syndrome." He essentially had no functioning small intestine, which made it impossible for him to get any nutritional benefit from eating. He was tied to an intravenous feeding system 12 hours a day to stay alive.
He and his parents, Derrick and Colleen McQueen, allowed our cameras to be flies on the wall during perfect summer days when he played baseball and went swimming with the neighborhood kids, when he was raced to a Newark, N.J., hospital with a potentially life-threatening fungal infection and when the doctors at Georgetown worried that he might also need a liver transplant.
Devin's transplant recently took place, and he was profiled for a "Nightline" broadcast airing tonight at 11:35 p.m. ET.
The second patient we followed was Gabrielle Phillips. Now almost a year old, when she was born last May her parents, Nina Vega and Jermel Phillips, thought everything was fine. Within 24 hours, however, it was apparent that Gabrielle was deathly ill. For an unknown reason, during birth her intestines had become twisted and had died.
"My whole family just were devastated," said Vega.
Immediate surgery to remove most of her intestine saved Gabrielle's life, but since then she has required the same intravenous nutrition -- TPN -- that McQueen relied on. Within months of birth she was listed on the transplant waiting list. In her case, however, the TPN has caused liver damage and she is now listed for a liver transplant as well as a small intestine.
Children's Organ Transplant Association
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