Pete Frates: A profile in ALS courage


The parallels are extraordinary, and so are the men.

Both were fantastic all-around athletes who happened to choose baseball. Both became captains of their elite teams. Both stood in the left-handers' batter's box at Fenway Park and hit big home runs. Both were admired for their spirit by teammates and opponents alike.

Then both were diagnosed with ALS at a young age.

We know about Lou Gehrig, about his feats with the New York Yankees and the speech he gave 75 years ago. If you want to know more about Pete Frates, the 29-year-old former Boston College center fielder now suffering from a disease named after Gehrig, you can find it here.

It's the website for the Pete Frates #3 Fund. It's dedicated to Pete and the different ways you can contribute to help defray his medical costs and to fund research into ALS.

But it also links Frates and Gehrig in their determination not to succumb to this cruel and mysterious disease. In a moving video that intersperses his past glories with his daily struggles, Pete says, "The story goes right now that you have it for a little while, or a long while, but either way the end is always the same: ALS always wins. So in order to rewrite the end of it, we need to raise awareness, money, funds to get better treatment and ultimately a cure."

Frates was diagnosed with ALS in March of 2012 after months of motor difficulty. Since that time, he has thrown out the first ball at Fenway, worked as the director of baseball operations for BC and done his best to educate people about ALS. He also married his girlfriend, Julie Kowalik, last June, and they are expecting a baby in September. One of the ironies of ALS is that as physical skills deteriorate, the brain remains unaffected. "My mind is sharper than ever," Frates says. "I notice every little thing."

His younger brother, Andrew, decided to quit his job to take daily care of Pete. Indeed, the devotion to Pete from family and friends provides a heart-warming balance to his heart-wrenching challenges.

In an email to this week, Pete Frates writes, "Lou's words inspire me to strive to be a better man every day. His words were not about him, but about thanking others for the wonderful opportunities he had in life. He praises others while deflecting attention away from his affliction. It has been 75 years since that famous speech and yet ALS patients still are in the same predicament as Gehrig; no treatment, no cure. In my eyes, this is completely unacceptable. Imagine if the rest of the world moved as slow as the treatment for ALS: Internet would not exist, cars would all be vintage, we would still be living in a segregated society, and the Great Depression would be a very recent memory, not a history lesson.

"Yet Gehrig's words are extremely relevant, because in the world of ALS, it might as well be 1939.

"Lou Gehrig is the face of ALS and one of the five best Major Leaguers ever. This year, MLB is shedding some light on our disease, but more must be done. MLB has such a vast reach, that if they took a true leadership role, then a cure could be much closer than it is now."

Pete typed that with his eyelids.

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