6-year-old excitedly tells people he's getting a new heart
John-Henry shared the good news with his friends at Cleveland Clinic Children's.
When 6-year-old John-Henry learned he would be getting a new heart, he couldn't resist telling all of his friends at Cleveland Clinic Children's.
The Ohio hospital posted footage of the boy, who was born with a heart condition, making the rounds in a TikTok video shared Tuesday.
"Phyllis, I'm getting a new heart!" John-Henry says excitedly in the video, greeting one staffer.
"Hey! I'm getting a new heart!" he yells out to another staffer, who gives him an enthusiastic high five.
According to Cleveland Clinic Children's, John-Henry was born with hypoplastic left heart syndrome, or HLHS, a rare congenital condition. HLHS occurs when the left side of the heart doesn't form as expected during pregnancy, and the condition impacts blood flow through the heart, according to the Centers for Disease Control and Prevention. This leads to the right side of the heart having to pump blood to the lungs and the rest of the body, causing the right side of the heart to become overworked.
According to the hospital, John-Henry needed multiple surgeries to treat his condition, but after he started to experience heart failure, doctors determined a heart transplant was his only option. The boy was placed on the transplant waiting list in December 2023, and in May 2024, he and his family learned they had a match.
In an interview with Cleveland Clinic Children's, John-Henry's mom Sarah Lee recalled when she told her son the life-changing news.
"I walked in the room teary-eyed to tell John-Henry, and when I told him, he said, 'I have to go tell everybody,'" Lee said.
John-Henry underwent heart transplant surgery the day after he shared the happy match news with his friends. The surgery was performed by a team led by pediatric and congenital heart surgeon Dr. Hani Najm.
After transplant surgery, John-Henry was then discharged in July to Cleveland Clinic Children's Hospital for Rehabilitation. He was discharged to go home on Aug. 23 to continue his recovery journey.
Sarah Lee said she wanted to share her son's story to raise more awareness about organ donation.
"Organ donation saved my son's life. Without it, he wouldn't be living right now. We're going to take great care of this special heart, and we're forever grateful to our donor and their family," Lee said.
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