Murnaghans Face Backlash After Sarah's Lung Transplant

Sarah Murnaghan's family addresses negative comments as Sarah recovers.

ByABC News
June 17, 2013, 2:43 PM

June 17, 2013— -- On Friday, June 14, Sarah's mother, Janet Murnaghan, posted a list of "facts" about lung transplants to her Facebook page, explaining that she'd seen a lot of misinformation "out there" and wanted to clarify a few things.

Murnaghan then said her Facebook page was for supporters only, and she didn't want to be tagged in anything in which people might speak negatively about her in the comments section.

On Sunday night, the "Save Sarah Murnaghan" Facebook page moderator addressed even more negative comments. The Murnaghan family spokeswoman said she did not know who created the page.

"I CANT BELIEVE SOME OF THE NEG COMMENTS," the moderator wrote. "Rude !!! rude !! rude !!!...please don't make neg comments ... this page is to encourage!!"

Federal Judge Michael Baylson drew criticism from the medical and bioethics communities for his June 5 decision to grant a temporary restraining order against Health and Human Services Secretary Kathleen Sebelius to prevent her from enforcing the so-called Under 12 Rule for Sarah.

"I think we can all sympathize with the plight of a young girl, but maybe a 13-year-old girl waiting for an adult organ is the one who didn't get a transplant," said Dr. Sander Florman, who directs the Mount Sinai Recanati/Miller Transplantation Institute in New York and hasn't treated Sarah. "I think it sets a very dangerous precedent to have a court deciding medical necessities and allocation even if the rules aren't right."

Read about who's worried about Sarah's ruling.

Some commenters on called for Sebelius to be "tarred and feathered" for initially refusing to make an exception for Sarah, while others passionately argued that Sarah's new lungs would have better served an adult.

Join the conversation in our comments section! Do you think Sarah should have gotten a lung transplant from an adult donor?

The ruling -- and eventual transplant -- also prompted editorials in the Philly Post of Philadelphia Magazine, the Chicago Tribune and others in which writers argued that they hoped Sarah's court battle wouldn't encourage others to seek legal action to trump medical guidelines. The Philadelphia Magazine editorial was titled "Maybe Sarah Murnaghan Shouldn't Get a Lung Transplant."

Sarah's June 12 lung transplant from an adult donor was the 11th of its kind since 1987. The last transplant from a donor older than 18 to a child younger than 12 took place a few months ago, according to an OPTN spokeswoman. The one before that happened in 2006, when the Under 12 Rule was new.

Murnaghan updated her Facebook page to say that Sarah's recovery was difficult but she was slowly improving. Sarah was still "fully sedated and critical" Sunday night but made positive "baby steps" by Monday morning.

As Murnaghan addressed negative commenters on Facebook Friday night, she wrote that the Organ Transplantation and Procurement Network ultimately "agreed" with her family "and has changed their policy for ALL kids so that children like Sarah can get on the over-12 list if their doctors deem it appropriate medically."

OPTN actually voted to keep the Under 12 Rule but added a part that allows for occasional exceptions. These children have to be recommended by their doctors and then have their cases reviewed by a national board before they can actually be exempted from the Under 12 Rule.