Without Legs or Arm, Boy, 12, Thrives

May 12, 2008 — -- Nick Santonastasso is a pretty talented kid: He can play the drums and the piano, has mastered two types of skateboards and is learning how to swim. And in April, Nick won a New Jersey art contest for a poster he drew.

And while these may all sound like typical accomplishments for a 12-year-old boy, Nick is special for other reasons.

Born without legs and with only one arm and one finger, Nick says he can do everything other kids his age can do.

"I'm capable of what everyone else is," Nick told ABCNEWS.com.

When asked how he skateboards with no legs, Nick replied simply, "I just jump on."

Nick is only the 12th person to be born with oromandibular limb hypogenesis syndrome or Hanhart syndrome type II, according to his mother, Stacey Santonastasso. She said doctors explained to her that the condition is not genetic or environmental, and just simply "happens."

Santonastasso found out about her son's condition while she was still pregnant with him and told ABCNEWS.com that her doctors had a "grim" prediction for her son's future.

"Nick didn't have any of the afflictions that the doctors thought he would other than the physical stuff," said Santonastasso. "[They said] he'd be on feeding and breathing tubes and have organ failure."

Nick, who is expected to live a full life, is otherwise perfectly healthy.

"Where we thought we'd have huge issues we did not," said Santonastasso, who also has three older children. "The biggest fear I had was that we wouldn't know how to do the right things for him, but basically my husband and I just said 'we're going to love him like our other children.'"

"We take it one day at a time," said Santonastasso.

Simple, everyday tasks are definitely a bit more complicated for Nick, but the family said there has yet to be anything he cannot do.

To eat, Nick uses a spoon made for people with arthritis that wraps around his arm.

To run, he uses his one arm to scoot his body forward.

And while learning to swim, he does what every other kid does and uses floaties to give him buoyancy.