Boy's 'Chocolate Bar' Book Nets $1M for Rare Liver Disorder Research
Thanks to friends from across the globe - in all 50 states and more than 60 countries - Dylan Siegel and his best friend Jonah Pournazarian have reached a megamilestone.
Dylan's book, "Chocolate Bar," written to raise funds for research into a rare liver disorder called glycogen storage disease type 1B, netted $1 million in book sales this week.
In fall 2012, Dylan, now 8, wrote and started selling the books for $20 each.
He wanted to help Jonah, now 9, who is one of 500 children in the world with the disease, which does not have a cure.
Every cent from the book has gone to the University of Florida lab where Dr. David Weinstein leads the research team studying and treating patients.
Weinstein said that when he finds a cure, he wants Dylan right there next to him.
The money has financed the hiring of a new geneticist, studies resulting in new gene-therapy treatments, and kept the facility open and on track to a cure within several years.
Dylan has vowed not to stop raising money until there is a cure.