Boy's 'Chocolate Bar' Book Nets $1M for Rare Liver Disorder Research

VIDEO: Find Out How Two Little Boys Just Made a Million Dollars
Share
Copy

ABC News

Thanks to friends from across the globe - in all 50 states and more than 60 countries - Dylan Siegel and his best friend Jonah Pournazarian have reached a megamilestone.

Dylan's book, "Chocolate Bar," written to raise funds for research into a rare liver disorder called glycogen storage disease type 1B, netted $1 million in book sales this week.

Boy author raises $750k for sick friend.

Boy raises more than $30,000 for sick friend.

Boy author raises $400k for sick friend.

In fall 2012, Dylan, now 8, wrote and started selling the books for $20 each.

For more information on "Chocolate Bar," click here.

He wanted to help Jonah, now 9, who is one of 500 children in the world with the disease, which does not have a cure.

Every cent from the book has gone to the University of Florida lab where Dr. David Weinstein leads the research team studying and treating patients.

Weinstein said that when he finds a cure, he wants Dylan right there next to him.

The money has financed the hiring of a new geneticist, studies resulting in new gene-therapy treatments, and kept the facility open and on track to a cure within several years.

Dylan has vowed not to stop raising money until there is a cure.

Join the Discussion
blog comments powered by Disqus
 
You Might Also Like...
See It, Share It
PHOTO: 106 year-old Virginia McLaurin is seen here in Busboys and Poets, Feb 22, 2016 in Washington.
Kate Patterson/The Washington Post/Getty Images
PHOTO: Fleet Week Hits New York
Timothy A. Clary/AFP/Getty Images
PHOTO: Anne Hathaway is seen attending the premiere of Disneys Alice Through The Looking Glass, May 23, 2016, in Los Angeles.
TSM/Bauer-Griffin/GC Images/Getty Images
PHOTO: Dr. Henry Heimlich demonstrates the heimlich maneuver on host Johnny Carson in this April 4, 1979 file photo.
Gene Arias/NBC/NBCU Photo Bank via Getty Images