Transcript for What these parents want you to know about caring for a child diagnosed with PANDAS
Let him as Brent Burns my wife Natalie and four children. Parker in the great gift and still reliable. Breezy to get longer it's cool and Lou coming very relaxed temper. That's our news teachers and classmates who loved by his family very reliable young man whose reliability rooms beyond his years. And it was known. He laughed and people. There's an controller in controlled the. Summer in the night when he was ten. There's immune system launched a campaign against his brand. And a matter of months dropped into psychosis hallucinations suicidal actions rages. Torturous anxiety obsessive behavior whole shouldn't seizures. Few losses fine motor skills couldn't draw anymore his parenting tank. He lost appetite lost weight he lost the ability to speak for four months. Oftentimes he's reduced to a crime Bowman corner in this thing would take him over again. Leave him in the utter shreds. I. It was a nightmare like we never knows. Partly don't. Finally realized that this consumer boy. And it's important found ourselves and fiber lines we'll life. To our astonishment. There are a number of doctors in this country. Lead the opposition to this condition. And these doctors have a stranglehold on the progression of treatment and research. For these kids. Your take on the care of your child. The care of your other children. You take on the insurance companies can take on the doctors and then you have to figure out what's gonna work for York. Because there are treatment guidelines that are in the it actually says if you try this for a period of time if that's isn't marketing. To doctors at work you do this after the repeated death. It's great to have treatment guidelines but if you don't have a doctor that's willing to work with me with post treatment guidelines and and stick with an that your your kids search tonight because you're not really appropriate care. It. Doctors need to listen we know our children. Okay my kid didn't show up at age three all the sudden Asperger's syndrome. He didn't show up at age nine and all of a sudden ADHD and nowhere. We know our kids listen. And OK don't justice and abuse them to do that thing is that they'll be dismissive. You know it's just resigning I think that's probably part of the reason why we took them that it was like I don't wanna because like we were having issues that and it needs help. This is where were this has for everywhere. Now I know over acts and now what do we do next. And we expect him to be back case. We expect to fight this through and find what ever it is where it is to whoever comes from the gives him full recovery he deserves. That's the same answer should be applied to every kid axis every single and every doctor ocean fish. These kids are worth pack. You're how can you look at her child that is in this state and say I'm so. Get out your notepad you call off bread begin on the you do that you Google something. I figured out. Give them accurate to do with them. Doctor. To sick child bull those things are abundantly clear. Quick it and do it. Why do you put our map. I just. I can't imagine any sleep but only being a doctor and turning to child awaited sick like parkers or worse you too. Sound determined to slay this dragon no matter why we're just one couple that represents. Thousands and thousands published hundreds out of our story it's it's all over story. But I hope for for these parents in these these kids in the future. Is that. It's racket nice. He's done that first tech map earth vocal. Burst little morsel of information. Recognized by parents teachers doctors you name. And they are treated appropriately. Oh.
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