Mother’s mission to bring awareness to rare kidney cancer

After Ritchie Johnson’s son died of a rare cancer, she started The Chris “CJ” Foundation, to honor her son and create awareness for Renal Medullary Carcinoma.
2:42 | 06/11/21

Coming up in the next {{countdown}} {{countdownlbl}}

Coming up next:

{{nextVideo.title}}

{{nextVideo.description}}

Skip to this video now

Now Playing:

{{currentVideo.title}}

Comments
Related Extras
Related Videos
Video Transcript
Transcript for Mother’s mission to bring awareness to rare kidney cancer
And we're back with the mother on a mission raise ago wareness about a rare form of kidney cancer and starting a foundation in her late son's honor to help save others. It affected my life in a devastating way. My youngest son Chris was 38 at the time of his diagnosis. And passed away 15 months after being diagnosed with this disease. It is short for ramc is an extremely aggressive and rare form of kidney cancer that affects those with sickle cell trait or other sickle cell traits. The doctor started working with Chris in July of 2011. He is basically the pioneer of remc research. The doctor came by to see Chris to tell him that he didn't have any further treatment for him. And Chris, being in the weak state he was in, he raced up on that bed with an extremely proud voice and he said, I have a 6-year-old daughter and you are a renowned physician and I need you to save me! At that time the doctor was speechless. And he workeded with Chris until his passing which was September 20th, 2012. The cj Johnson foundation was formed in April of 2013. This is something Chris wanted to do. While receiving treatment at MD Anderson, he noticed there was a lack of advocacy for kidney cancer in general and remc was unheard of. As his mother, I felt I needed to carry out his wishes. More and more patients are now being diagnosed with remc whereas before by the time Chris was diagnosed, they would see one patient or two patients a now they see at least 100 a year. We have a peer support group and annually we have our number one fund-raiser which is our keeping it ringing run/walk we have. I'm excited for the progress that we've made. We're out there in the community. I feel even better once we find a cure for remc. Then I can say that we fulfilled our mission. Wow. What a beautiful story of a mom - there carrying on her son's legacy. Thanks to Richy for. That all right.

This transcript has been automatically generated and may not be 100% accurate.

{"duration":"2:42","description":"After Ritchie Johnson’s son died of a rare cancer, she started The Chris “CJ” Foundation, to honor her son and create awareness for Renal Medullary Carcinoma.","mediaType":"default","section":"ABCNews/GMA","id":"78222097","title":"Mother’s mission to bring awareness to rare kidney cancer","url":"/GMA/GMA3/video/mothers-mission-bring-awareness-rare-kidney-cancer-78222097"}