Transcript for 11-Year-Old 'Allergic' to Sunlight
As we approach fourth of July many of us are looking forward to having some fun in the sun but for one California girl that exposure could be fatal. Eleven year old Savannah the workers and is allergic to the son she's like Palin feels like London's England porn on you really hurt us. At age four blisters and sores began appearing on her hands and arms many doctors diagnosed the rash like symptoms as eczema but that his mother believed it was more serious she tells adopting sunny. You think she's alleged to his son in the images same sentinel in Chile to his son and she was right at age nine she was finally diagnosed with heat heat heat which is the defects in hemoglobin production. Which make fanatic Felix is being burned alive when exposed to the sun. All of sudden you start screening and I'm violent attack out there and stuff so it in the water. In the bathroom and come back obviously drenching on her. To avoid these symptoms Savannah where SPF clothing uses its super SPF umbrella and travels in a car with heavily tinted windows. She still finds ways to have fun with an indoor trampoline. Parties at sunset she even part of it cheerleading squad. Doctors say EPP is so rare only a few hundred people suffer from it in the US there's no cure there is medics and that can help those affected. To be less sensitive to the sun. Drug is not yet approved by the FDA and Savannah hopes one day there will be a cure parish sheriff Andy Keaton. Kazan Allen Cohen in the false it's really hard and.
This transcript has been automatically generated and may not be 100% accurate.