Little boy with celiac disease shares emotional letter

Across the country, children with celiac disease speak up about their experience during Celiac Disease Awareness Month.
2:23 | 05/20/21

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Transcript for Little boy with celiac disease shares emotional letter
May is seal yak disease awareness month and tonight, the 8-year-old hoping we would report on it. It all started with jack Sperry from Philadelphia and the letter he wrote me. Hi, I'm jack Sperry and let me read my letter to David Muir and "World news tonight." Jack's writing about seal yak disease. Dear Mr. Muir. When I turned 8 in March, I wished for a cure for celiac disease. Jack watches the news and hopes to get the word out. I watch you every night with my dad. You are a great storyteller and I have learned a lot from you. Including about the nih. And according to the nih, 2 million Americans have celiac disease. Some estimate up to 3 million. Eating without fear is our hope. Food insecurity happens for celiacs every day. Can you help me tell this story this may, which is celiac awareness month? And when his friends learned he was reaching out, they did, too. Hey, David! They have celiac disease, too. I have celiac disease. Maggie, a third grader from Virginia. I didn't have to bring my own food and I didn't have to worry about cross contamination. Hey, David. Tenth grader matthias from Norris town, Pennsylvania. The only treatment is a strict gluten free diet, which is pretty tough. And ava from Maryland. Not all package foods are clearly labeled. Jack's mother Leslie takes photos of gluten free foods that she finds at the supermarket and she posts them. All of these families helping one another. My favorite foods are burgers, pizza, chicken fingers and fries. My mom has been able to find or make gluten free versions of my favorite foods. I love cooking with her. Jack and his family and other families have gone to capitol hill. A bipartisan congressional briefing, asking for help. Solving celiac could be the gateway to understanding so many other diseases. But we need a treatment that's better than the gluten free diet. Bye, David! Well, jack, thank you for your letter. It made a different. Good night.

This transcript has been automatically generated and may not be 100% accurate.

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