Little boy and family continue to battle heartbreaking health challenge

A toddler’s rare neuromuscular disease led doctors to believe he would pass away by the time he was 2 years old, but he is now celebrating his third birthday.
1:51 | 12/02/19

Coming up in the next {{countdown}} {{countdownlbl}}

Coming up next:

{{nextVideo.title}}

{{nextVideo.description}}

Skip to this video now

Now Playing:

{{currentVideo.title}}

Comments
Related Extras
Related Videos
Video Transcript
Transcript for Little boy and family continue to battle heartbreaking health challenge
Finally tonight the little boy and his family bravely facing a heart-breaking health challenge and a victory the whole town is celebrating. It's America strong. Here's ABC's Marci Gonzalez. Reporter: This is what a typical day can look like for Nash stineman. You're such a strong boy. Reporter: Wires, oxygen masks and those dreaded needles. Just a part of the toddler's battle with a rare disease called spinal muscular atrophy with respiratory distress. Or "Smard," that doctors said would end his life by the time he turned 2. Can you say good night? Can you give one smile? Reporter: And yet, here he is on his 3rd birthday with something pretty special to smile about. His whole community in lincolnshire, Illinois coming together throwing a parade. More than 100 trucks, flashing lights, all those balloons celebrating the milestone little Nash wasn't expected to reach. We were beaming inside. Nash was beaming inside. He is literally the strongest person that I know. He has overcome and defied so many odds. Reporter: But the days requiring that resiliency are far from over. His family's non-profit called smash smard already raising more than $2 million to pay for research for a cure. They still need another $3 million to fund a clinical trial for gene replacement therapy for Nash and other kids like him. Nash's parents and older brother determined to keep that smile around for many more Nash, keep fighting. We look forward to more parades. Thanks for watching. I'm Tom llamas for "World news tonight." "Gma" first thing in the morning. David Muir back here tomorrow night. Have a great evening.

This transcript has been automatically generated and may not be 100% accurate.

{"duration":"1:51","description":"A toddler’s rare neuromuscular disease led doctors to believe he would pass away by the time he was 2 years old, but he is now celebrating his third birthday.","mediaType":"default","section":"ABCNews/WNT","id":"67424408","title":"Little boy and family continue to battle heartbreaking health challenge","url":"/WNT/video/boy-family-continue-battle-heartbreaking-health-challenge-67424408"}